Four disabled Black and racialized folks gather around a table during a meeting. A Black woman sitting on a couch gestures and speaks while the three others (a South Asian person sitting in a wheelchair, a Black non-binary person sitting in a chair, and a Black non-binary person standing with a clipboard and cane) face her and listen.

About

Our Mission

The Lipodystrophy Canada Foundation was built to support Lipodystrophy patients and caregivers.

Lipodystrophy is a rare genetic/acquired disorder characterized by various degrees of fat loss, dyslipidemia, severe insulin resistance, cardiovascular complications, and other metabolic abnormalities.

We would like to reach out to lipodystrophy patients Canada-wide to create a small but mighty community. We envision our foundation to bring together resources and support for patients and caregivers as well as health care providers.

Our Story

This foundation is the Canadian subsidiary of Lipodystrophy United, which is based in the USA and supports community members world wide, while our foundation is much more localized to Canada based, nation wide resources.

The current Executive Director of Lipodystrophy Canada is Dr. Sonia Rehal, a research scientist, educator, patient advocate, and women of Color who has Lipodystrophy, with the specific Familial Partial Dinnigan Variety.

Dr. Rehal is extensively involved in international efforts, community building and advocacy towards lipodystrophy awareness, and she is cultivating this foundation to centre those based in Canada with lived and intersectional experiences with this rare disease.

Contact Us

Have questions about our work or how you can get involved? We’d love to hear from you.

Reach Out

Stock photo above is from the Disabled And Here project. Find more info on their work.